"I've had hundreds of tests, and I've spent tens of thousands of dollars searching for answers.  Yet I sit here today, no better, and with no more answers than when this started four years ago.  It truly feels like my body is being tortured." 

 

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"I’m not an anxious person so I think it was all a perfect storm of events that led up to my jerking. Just as I would doze off my body felt like an adrenaline rush - a hard jolt that would cause my whole body to react. It would go on and on, keeping me awake." 

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"My nervous system shoots a jolt of electricity down my spine that convulses my body awake every time I reach the moment of sleep onset, and I have no power to stop it. These sudden body spasms will keep me awake the entire night, one violent shock after another (after another). I have had to give up many rigorous physical activities I used to enjoy because they seem to make my symptoms even worse."

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"I had no idea what was happening to me... It certainly was scary having the feeling that my body could no longer shut down without being woken by a twitch. I didn’t realize then how much worse they would become.... "

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